Friday, February 8, 2019

Something Different

Lima, Peru, October 2018. We could not exactly figure out what this contraption was, but we guessed it was an older version of the Flux Capacitor.
Something Different

Test results sometimes vary, and mine has. The genetic marker that showed up in my 2016 tests failed to appear in my most recent tests. That means I cannot be in the first trial, but I can be in another, so here we go—at least that is where we are right now. For a while, it will mean a couple of trips to Emory each week, and all the meds of the first study plus one. Cancer patients receive a "cocktail" of several meds, and those cocktails vary from cancer to cancer, and even patient to patient. (These, by the way, are the only cocktails I have ever had.)

Prayers are greatly appreciated. Pray that the meds work, side effects are minimal, and God is glorified.

For those who want to know more, private message me on Facebook and I can give you more details.

Monday, January 28, 2019

Convergence

Traffic in Lima, Peru, October 2018
Convergence

Traffic in Lima can be interesting. Here we see two busses that appear to be converging to squash the fellow carrying the produce. Everyone got through the traffic jam safely with no injuries or bent metal.

There appears to be a convergence of treatment regarding my cancer. So much is happening so quickly. 

Back in November I wrote about some changes in my Multiple Myeloma status. After another visit to Emory’s Winship Cancer Center last Tuesday, here is where I am headed—a clinical trial. Let me say at the start that I think this is good. It is NOT a last ditch effort to keep me around, but a course of treatment that seems to hold the most promise for me right now. There are multiple other treatment options, and those remain as a possibility for treatment later on, or if I don’t get accepted into the trial, or if the trial meds don’t work as expected. 

I have to go through the prescreening process, which is tomorrow, January 29. It involves blood work, x-rays, and some other fun things, but we assume that I qualify based on previous test results. Once that hurdle is cleared, we will set up a treatment schedule and get on with it.

The trial involves a medication already approved for the treatment of certain types of leukemia (CLL). The medication is called Venetoclax. About 15% of people with Multiple Myeloma (MM) have a particular genetic marker, and for those people, this medication seems to be very effective. That is what the trial is about. 

I will also receive a couple of other medications. Cancer patients are often recipients of a combination of medications that help fight the disease. Venetoclax is a chemotherapy medication. I will also receive an immunotherapy medication called Darzelex (daratumumab), as well as a steroid. 

Please pray all will go well tomorrow, including the travel to Emory and back, and that if this is God’s direction for me, that I will be accepted in the trial. While the medications are amazing, prayer is the main ingredient in my treatment. Always. 

I will post again when we know the results of the tests. 

Blessings,

Tom

Friday, November 30, 2018

"Teach Us To Number Our Days" or "Bump In The Road Update, November 30, 2018"

Mountain Sunset, Yauyos District, Lima State, Peru, October 14, 2018, Tom Lowry Photo
The photo above was taken around Tres Cruces on October 14, as several friends and I headed back from Ayaviri to Omas. We were somewhere around 12,000 feet up. It is ruggedly beautiful. The people are wonderful, too.

The sunset relates, though, to Psalm 90:12, "So teach us to number our days that we may gain a heart of wisdom." This is a line from a Psalm of Moses, and if you know Moses' story, you know he had seen many challenges, difficulties, and victories in life. While yours and mine might not be on the scale or notability of those of Moses, life is filled with all kinds of things, good or bad, easy or hard, happy or sad. Moses is saying that we need to be wise and realistic about life.

The Preacher Ecclesiastes well makes the point that no matter what we accomplish in life, we are all going to die, and, at least after a generation or two, no one will remember us. Sorry. It isn't the most encouraging book, but it is realistic. None of us lasts forever.

In a few days I will have my second ever PET scan. That funny little number (IgL) that rose up when I wrote about this in 2015 and 2016 is trying to get out of control again, and so the doctors and I are looking ahead to the next step—probably a change in medication in hopes of continuing to punch this Multiple Myeloma in the nose. I will keep you posted about that. Results will likely take awhile, as tests usually beget more tests, and all of them together help determine a course of action.

Anytime a little glitch comes in our health, it should remind us of the temporary nature of our lives. That should give us a realistic perspective, and move us in the direction in making a difference. If you are a follower of Christ, that is especially true. How are you impacting this earth for the glory of God?

As you pray for me, pray:

  • First that God will be glorified in all of this.
  • Second, that the right medication(s) can be found to treat this stuff, and,
  • Third, the side effects will be minimal. 

Moses says in Psalm 90:14, "Satisfy us in the morning with your steadfast love, that we may rejoice and be glad all our days."  May we lean on Him for our satisfaction and hope.



Tuesday, July 19, 2016

Good Dog, Levi. Good Dog



I noticed the tale had stopped wagging on Friday. Levi’s “glad to see you” wag was the usual side to side, but if it had been awhile since he had seen and been with you—an hour or two—you’d get the circle wag. Now it almost never moved.

We said goodbye to Levi today. To keep him here any longer would have been selfish of us and meant misery for him. At his annual vet visit earlier this year, the doctor warned us that there were two things that would probably progress to a point where we “would have a decision to make.” The day has come. And we are sad. But we are glad, because Levi was a good dog.

Levi came to live with us more than thirteen years ago. His mother, who lived next door, was a licentious woman. an escape artist, and the friendliest boxer I have ever seen. We never met Levi’s dad, but he must have been a Shepherd or a Lab because Levi could shed an amazing amount of hair. Levi was a good dog.




Levi lived first in our kitchen. He had a rough start, but some medicine turned him around quickly. When we had to leave the house, we would leave him in the kitchen with baby gates at each door, but he would scale those with ease (like his momma) and find his way to the living room sofa. Okay, sometimes he wasn’t, but mostly, Levi was a good dog.






Levi grew and the backyard became his domain. He got lots of exercise chasing squirrels - don’t know if he every really caught one. If another, slower animal wandered into our back yard, woe would befall them in Levi. Poor possums. He really just wanted to play with them, but they didn’t know how. He figured his job was to protect his domain from all intruders. He did once overstep his bounds and latched on to the hand of a visitor. As soon as he did, it was like (probably due to my tone of voice) he knew he’d had a momentary lapse of good sense, he released the hand and headed to his hiding place under the shop. Other than that, Levi was a good dog.

Levi did not like to eat alone (unless there was steak or other human food in the bowl—a rarity). All of us, as well as those who would feed him when we were away, knew that. I read a lot of the Augusta Chronicle standing in the backyard while Levi finished his breakfast. He made sure I was up-to-date on current events. Levi was a good dog.

When April and I were at Emory for months in 2010 for my cancer treatment and stem cell transplant, Levi was here, keeping Philip company, and listening to whatever Philip had to say. Levi was a good dog.





When he was younger, he loved to run, play fetch, wrestle, and just do the dog things that make us love them. As he got older, he would act like he wanted to play fetch—looking longingly at a ball—and when I would throw it I would get that, “Gee dad, you really threw that a long way.” And he wouldn’t budge. His hearing began to fail. Lots of things pointed to the fact that we were nearing the end. As his physical condition changed, he was helping us get ready for that last day. Levi was a good dog.

We don’t usually think about it, but when you bring a pet into your life, you know, deep down, that they will not outlive you. That is just the way it is. But you cannot really be prepared, totally, for the good-bye day, no matter how it comes about. There will be many times, I am sure, that I will be in the backyard and expect to see him. I’ll find a toy, a ball, a hole, or some other thing that will remind me of Levi. But that is okay. I will love having the memories. My whole family will, because, even though we are sad today, we remember, Levi was a good dog.

Tuesday, April 26, 2016

Bump In The Road #5

dys·cra·sia
dəˈskrāZH(ē)ə/
nounMEDICINE noun: dyscrasia; plural noun: dyscrasia         
          an abnormal or disordered state of the body or of a bodily part.
(Definition provided by Google)



"Dyscrasia" originates from the Greek language. It roots are the Greek “dus” and “krasis” and literally means “bad mixture” or “bad combination.”
Several months ago I wrote about a bump in the road regarding my health. 
The bump has grown and the dyscrasia was noted. It means my cells are between normal and having full blown Multiple Myeloma again. I’ll probably give more details later, but for now this means it is time to add to the maintenance chemo pill that I have been taking since shortly after my Stem Cell transplant in 2010. What are they adding? First, there is dexamethasone. It is a steroid that enhances the work of the chemo pill and helps in other ways. It has a few side effects, but is nothing compared to what other cancer patients endure. 

The second drug is Empliciti (Elotuzumab). It has to be administered via IV, so about ten days ago I got a port, and about a week ago I got my first round. I will get a dose every Tuesday for nine weeks, then every other week for, well, only God knows. I noticed no side effects from this drug last week.

Empliciti is one of the new immunotherapy drugs, and the way I understand it, causes my immune system to produce extra numbers of a certain kind of T-Cell, and it also reacts with the myeloma cells to make them noticeable to these T-Cells, which then attack them and destroy them. A helpful article can be found at http://www.themmrf.org/multiple-myeloma-knowledge-center/myeloma-drugs-guide/empliciti-elotuzumab/

And so we begin…
Hopefully this will be little more than an inconvenience in my schedule. The doctors tell me I should still be able to lead mission teams, maintain my schedule and keep on going. That is encouraging.

Pray…
But I do request your prayers. I need them. I have said since my diagnosis in 2009 that the main thing in my treatment is your prayers. The goal is always that God is glorified. 

My mom…
The delay in getting this word out was because I wanted to tell my mother in person. Some of you now she has been in the hospital and now in rehab. I was able to tell her that last Thursday. Pray for my mom as she, my brother and our families are working on some new living arrangements. It is a huge transition. My family moved into that house five months before I was born. 

As I posted earlier today on Facebook,

“Fear not, for I am with you. Be not dismayed for I am your God. I will strengthen you. I will help you. I will uphold you with my victorious right hand.” (Isaiah 41:10).